It still amazes me everyday when I wake up to my 3 beautiful babies. It's so surreal sometimes to think that I went from 1 kid to 3 all at once! It's only been 6 months but I feel like I've had all of them with me for a lot longer than that. It's just crazy that the twins are already have way through their first year and Cam is starting kindergarten this fall. They go from these tiny little babies to walking, talking, big kids so quickly! I find myself missing the newborn stage but so excited for them to move on to new things.
We have a great routine. The twins eat their first bottle around 7 am and then they go back to sleep until the next feeding around 10am! I send Cam off to school at 8:30 and after that I have time to do whatever until the twins wake back up. They're such good babies. Cam us doing so good too. His vocabulary has exploded and he is such a smart little man! Unfortuately his testing for kindergarten does not reflect that. His teachers don't want him to be in full time kindergarten. They want to do half special education and half kindergarten. They think he is lacking in communication and they can't be further from the truth! He speaks so well and he socializes with family, friends, and even strangers. I have meetings to discuss everything with them this month and they will not like what I have to say. But I have to tell them how wrong they are. He is as every bit as smart as any other kid there. He needs a little physical help but cognitively he is doing great, I just have to get them to see it.
Besides the normal daily grind of school, work, and babies our life is pretty much the same. The weekend of May 20th Chad and I are taking a much needed escape to Lake of the Ozarks. We're staying in a gorgeous hotel called the Lodges at the Four Seasons. I'm so excited to get out of town and have some alone time with Chad. It will be the first time we've left the twins for more than a few hours so I'm a bit nervous about that! I just hope with the help of my sister and my brother's girlfriend my mom won't get overwhelmed with them. Plus Cam is going to our aunt's house for the weekend so that will help take some of the load of my mom. haha......We always have a few endeavors that don't go well for us but we have a lot that is going well for us. And I'm so thankful for all that we do have.
Saturday, May 7, 2011
Cameron's story (my oldest son's stroke & epilepsy details)
Cameron was born Nov 27th,2005 at 40 wks gestation. At birth the doctors said he was fine and pretty quickly I relaized he wasn't. He wouldn't sleep more then 30 mins at a time and he wouldn't eat more then an oz here and there. He kept making odd movements where he would move his lil fists back and forth quickly toward his chest over and over then it would stop for awhile and then happen again. I called the doctor and nurse in to see it several times but they never saw it til the day after he was born. So 4 am 16 hrs after being born a nurse finally saw him do what I had been describing and it was diagnosed then that he had been seizing the whole time!! I was so upset and scared. He was life flighted to Children's Mercy where we found out he had a masive stroke in uetero due to blod clots in both carotoid arteries. It wasn't caught in ultrasounds b/c he had the stroke just about a week before I had him.
Cam spent 2 weeks in the NICU where he was started on seizure meds. He had a feeding tube for awhile and even a few sleep apnea spells. The doctors told us if he lived it would be a miracle and that he would never walk, talk, or recognize anyone if he did make it past 48 hrs old. I was so sad and so heartbroken. The thought of him dying at just a few days old or being incapable of a "normal" life made me so depressed. I was also a 1st time mom and only 20 yrs old. After a few days of the seizure med he stopped seizing and got off the oxygen about a week later. He also started to nipple feed and the tube was taken out after about a wk. He came home just before Christmas 2005.
After that he was pretty much a regular newborn and didn't seize again until the neuro tried to wean him at 6 months. He started seizing again after only about a day into weaning so we went back to the children's hospital and he had an EEG and EKG. The neuro started him on Trileptil to help control the seizures. He was also diagnosed with infantile spasms at the time. The neuro prescribed ACTH injections for the spasms and I had to administer them every day for 2 months. The shot stopped the spasms and we were then swithced to Topmax which the neuro thought was better for a long term solution to the seizuers. Cameron is now 5 and has been seizure free for about 4 years!! I'm so proud of him and all that he has made it through.
He started early childhood pre school at age 3 so he could do physical therapy, occupational therapy &speech. He has become so expressive since starting pre school. His speech has blossomed and he is in the average range on his speech compared to other 5 yrs olds. He continues to work on his left sided weakness in therapy since he has limited left hand usage.
He is now getting ready for kindergarten this fall. I'm so nervous about him starting elementary school! I want so much for him to just be treated like a normal little boy! I don't know if he gets to be in the kindergarten class full time or part time in class and part time special education but I'm so emotional about it. I don't know if anyone else feels this way but I hate the word SPECIAL! I think so many ppl say it as an insult or to make fun of people and I just want my son to be the best he can be and to be treated with dignity and respect. The older he is and more aware he is I worry about how the world will treat him and it breaks my heart.
He is a sweet, smart, onry little miracle boy and I love him so so much!! I guess I don't see my son as special needs. He has always been and always will be a normal little boy to me and I see no reason to make him think he has any limitations. I am in no way ashamed of him, I guess it's just hard for me to accept why this happened to him or why it happens to any kid at all. I would give my life for my son to be able to live a full and happy life without the cruelness of others. And now with Elementary school approaching I realize I may need to reach out to others in order to make his transition as easy as possible.
Cam spent 2 weeks in the NICU where he was started on seizure meds. He had a feeding tube for awhile and even a few sleep apnea spells. The doctors told us if he lived it would be a miracle and that he would never walk, talk, or recognize anyone if he did make it past 48 hrs old. I was so sad and so heartbroken. The thought of him dying at just a few days old or being incapable of a "normal" life made me so depressed. I was also a 1st time mom and only 20 yrs old. After a few days of the seizure med he stopped seizing and got off the oxygen about a week later. He also started to nipple feed and the tube was taken out after about a wk. He came home just before Christmas 2005.
After that he was pretty much a regular newborn and didn't seize again until the neuro tried to wean him at 6 months. He started seizing again after only about a day into weaning so we went back to the children's hospital and he had an EEG and EKG. The neuro started him on Trileptil to help control the seizures. He was also diagnosed with infantile spasms at the time. The neuro prescribed ACTH injections for the spasms and I had to administer them every day for 2 months. The shot stopped the spasms and we were then swithced to Topmax which the neuro thought was better for a long term solution to the seizuers. Cameron is now 5 and has been seizure free for about 4 years!! I'm so proud of him and all that he has made it through.
He started early childhood pre school at age 3 so he could do physical therapy, occupational therapy &speech. He has become so expressive since starting pre school. His speech has blossomed and he is in the average range on his speech compared to other 5 yrs olds. He continues to work on his left sided weakness in therapy since he has limited left hand usage.
He is now getting ready for kindergarten this fall. I'm so nervous about him starting elementary school! I want so much for him to just be treated like a normal little boy! I don't know if he gets to be in the kindergarten class full time or part time in class and part time special education but I'm so emotional about it. I don't know if anyone else feels this way but I hate the word SPECIAL! I think so many ppl say it as an insult or to make fun of people and I just want my son to be the best he can be and to be treated with dignity and respect. The older he is and more aware he is I worry about how the world will treat him and it breaks my heart.
He is a sweet, smart, onry little miracle boy and I love him so so much!! I guess I don't see my son as special needs. He has always been and always will be a normal little boy to me and I see no reason to make him think he has any limitations. I am in no way ashamed of him, I guess it's just hard for me to accept why this happened to him or why it happens to any kid at all. I would give my life for my son to be able to live a full and happy life without the cruelness of others. And now with Elementary school approaching I realize I may need to reach out to others in order to make his transition as easy as possible.
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